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原发性胆汁性胆管炎健康相关生存质量量表及影响因素

杨娴 唐映梅

引用本文:
Citation:

原发性胆汁性胆管炎健康相关生存质量量表及影响因素

DOI: 10.3969/j.issn.1001-5256.2020.09.050
基金项目: 

国家自然科学基金项目(81660102); 云南省科技厅科技计划项目(2018FE001); 

详细信息
  • 中图分类号: R575.7

Health-related quality-of-life scales and related influencing factors in patients with primary biliary cholangitis

Research funding: 

 

  • 摘要:

    原发性胆汁性胆管炎(PBC)是一种自身免疫介导的慢性进行性肝病,后期可进展为肝硬化、肝癌,其临床表现及各种并发症使患者身心均受累,导致健康相关生存质量(HRQL)下降。当前人们对HRQL越来越重视,总结了国内外常用于评估PBC患者HRQL的量表,并分析了影响PBC患者HRQL的主要因素,以帮助临床更好地治疗及监测PBC患者。

     

  • [1] XU L,ZHENG YQ,SHI Z,et al. Influencing factors for the prognosis of primary biliary cholangitis[J]. J Clin Hepatol,2019,35(8):1870-1873.(in Chinese)徐黎,郑玥琪,时桢,等.原发性胆汁性胆管炎预后的影响因素[J].临床肝胆病杂志,2019,35(8):1870-1873.
    [2] HIRSCHFIELD GM,DYSON JK,ALEXANDER G,et al. The British Society of Gastroenterology/UK-PBC primary biliary cholangitis treatment and management guidelines[J]. Gut,2018,67(9):1568-1594.
    [3] KARIMI M,BRAZIER J. Health,Health-Related Quality of Life,and Quality of Life:What is the difference?[J]. Pharmacoeconomics,2016,34(7):645-649.
    [4] WARE JE Jr,GANDEK B. Overview of the SF-36 health survey and the International Quality of Life Assessment(IQOLA)project[J]. J Clin Epidemiol,1998,51(11):903-912.
    [5] ZHENG YB. Influencing factors of quality of life in hospitalized patients with chronic liver disease[J]. Guangxi Med J,2018,40(7):788-791.(in Chinese)郑亚彬.慢性肝病住院患者生存质量的影响因素研究[J].广西医学,2018,40(7):788-791.
    [6] GOLOVNOVA EV,LIU I,TSAREGORODTSEVA TM,et al. Primary biliary cirrhosis:12-year experience in observation[J].Ter Arkh,2003,75(2):26-30.
    [7] RANNARD A,BUCK D,JONES DE,et al. Assessing quality of life in primary biliary cirrhosis[J]. Clin Gastroenterol Hepatol,2004,2(2):164-174.
    [8] WONG GL,LAW FM,WONG VW,et al. Health-related quality of life in Chinese patients with primary biliary cirrhosis[J]. J Gastroenterol Hepatol,2008,23(4):592-598.
    [9] JACOBY A,RANNARD A,BUCK D,et al. Development,validation,and evaluation of the PBC-40,a disease specific health related quality of life measure for primary biliary cirrhosis[J]. Gut,2005,54(11):1622-1629.
    [10] WANG HT,REN LM,LIU Y,et al. Evaluation of SF-12 health survey scale[J]. Chin J Gen Pract,2015,14(7):574-576.(in Chinese)王海棠,任利民,刘瑶,等.SF-12健康调查量表的评价研究现状[J].中华全科医师杂志,2015,14(7):574-576.
    [11] WONG LL,FISHER HF,STOCKEN DD,et al. The impact of autoimmune hepatitis and its treatment on health utility[J].Hepatology,2018,68(4):1487-1497.
    [12] WANG Z,LIU ZW,ZENG XY,et al. Health-related quality of life in patients with colorectal cancer precancerous lesions on EQ-5D-5L[J]. Pract Oncol J,2018,32(4):320-326.(in Chinese)王志,刘忠卫,曾雪芸,等.基于EQ-5D-5 L的结直肠癌癌前病变患者健康相关生命质量研究[J].实用肿瘤学杂志,2018,32(4):320-326.
    [13] LYU ZW,WANG QX,MA X. Assessment of the quality of life associated with autoimmune liver disease[J]. Int J Dig Dis,2019,39(2):73-76.(in Chinese)吕珠婉,王绮夏,马雄.自身免疫性肝病的健康相关生活质量评估[J].国际消化病杂志,2019,39(2):73-76.
    [14] YOUNOSSI ZM,KIWI ML,BOPARAI N,et al. Cholestatic liver diseases and health-related quality of life[J]. Am J Gastroenterol,2000,95(2):497-502.
    [15] CHARATCHAROENWITTHAYA P,TALWALKAR JA,ANGULO P,et al. Moexipril for treatment of primary biliary cirrhosis in patients with an incomplete response to ursodeoxycholic acid[J]. Dig Dis Sci,2010,55(2):476-483.
    [16] ZEC S,POPOVIC D,MATOVIC V,et al. Translation and validation of the Serbian primary biliary cholangitis-40 questionnaire[J]. PLo S One,2017,12(4):e0175697.
    [17] RASZEJA-WYSZOMIRSKA J,WUNSCH E,KRAWCZYK M,et al. Assessment of health related quality of life in polish patients with primary biliary cirrhosis[J]. Clin Res Hepatol Gastroenterol,2016,40(4):471-479.
    [18] MILOVANOVIC T,POPOVIC D,STOJKOVIC LALOSEVIC M,et al. Quality of life in patients with primary biliary cholangitis:A single center experience in Serbia[J]. Dig Dis,2020.[Online ahead of print]
    [19] KAPS L,GRAMBIHLER A,YEMANE B,et al. Symptom burden and treatment response in patients with primary biliary cholangitis(PBC)[J]. Dig Dis Sci,2019.[Online ahead of print]
    [20] YAGI M,TANAKA A,ABE M,et al. Symptoms and healthrelated quality of life in Japanese patients with primary biliary cholangitis[J]. Sci Rep,2018,8(1):12542.
    [21] ZHANG S,WANG L,ZHANG LL,et al. Analysis of the relationship between health-related quality of life(primary biliary cholangitis-40)and clinical presentations of patients with primary biliary cholangitis[J]. Chin J Rheumatol,2018,22(12):798-801.(in Chinese)张硕,王立,赵丽伶,等.原发性胆汁性胆管炎生活质量指标PBC-40与临床指标相关性分析[J].中华风湿病学杂志,2018,22(12):798-801.
    [22] KRAWCZYK M,KOZ'MA M,SZYMAN'SKA A,et al. Effects of liver transplantation on health-related quality of life in patients with primary biliary cholangitis[J]. Clin Transplant,2018,32(12):e13434.
    [23] CARBONE M,MELLS GF,PELLS G,et al. Sex and age are determinants of the clinical phenotype of primary biliary cirrhosis and response to ursodeoxycholic acid[J]. Gastroenterology,2013,144(3):560-569. e7; quiz e13-e14.
    [24] KHANNA A,JOPSON L,HOWEL D,et al. Rituximab is ineffective for treatment of fatigue in primary biliary cholangitis:A phase 2 randomized controlled trial[J]. Hepatology,2019,70(5):1646-1657.
    [25] MONTALI L,TANAKA A,RIVA P,et al. A short version of a HRQo L questionnaire for Italian and Japanese patients with primary biliary cirrhosis[J]. Dig Liver Dis,2010,42(10):718-723.
    [26] JONES D,PATANWALA I,NEWTON JL,et al. Comparison of the PBC-40 and PBC-27 tools for quality of life assessment in english speaking primary biliary cirrhosis patients[J]. Gut,2011:60(Suppl 1):a243.
    [27] ALRUBAIY L,MELLS G,FLACK S,et al. PBC-10:A short quality of life measure for clinical screening in primary biliary cholangitis[J]. Aliment Pharmacol Ther,2019,50(11-12):1223-1231.
    [28] ZAKHARIA K,TABIBIAN A,LINDOR KD,et al. Complications,symptoms,quality of life and pregnancy in cholestatic liver disease[J]. Liver Int,2018,38(3):399-411.
    [29] KHANNA A,LEIGHTON J,LEE WONG L,et al. Symptoms of PBC-pathophysiology and management[J]. Best Pract Res Clin Gastroenterol,2018,34-35:41-47.
    [30] JIN XY,KHAN TM. Quality of life among patients suffering from cholestatic liver disease-induced pruritus:A systematic review[J]. J Formos Med Assoc,2016,115(9):689-702.
    [31] GOSSARD AA,LINDOR KD. Current and promising therapy for primary biliary cholangitis[J]. Expert Opin Pharmacother,2019,20(9):1161-1167.
    [32] JOPSON L,JONES DE. Fatigue in primary biliary cirrhosis:Prevalence,pathogenesis and management[J]. Dig Dis,2015,33(Suppl 2):109-114.
    [33] LEE JY,DANFORD CJ,TRIVEDI HD,et al. Treatment of fatigue in primary biliary cholangitis:A systematic review and meta-analysis[J]. Dig Dis Sci,2019,64(8):2338-2350.
    [34] DE VLOO C,NEVENS F. Cholestatic pruritus:An update[J].Acta Gastroenterol Belg,2019,82(1):75-82.
    [35] HEGADE VS,MELLS GF,FISHER H,et al. Pruritus is common and undertreated in patients with primary biliary cholangitis in the United Kingdom[J]. Clin Gastroenterol Hepatol,2019,17(7):1379-1387. e3.
    [36] TRIVEDI HD,DANFORD CJ,GOYES D,et al. Osteoporosis in primary biliary cholangitis:Prevalence,impact and management challenges[J]. Clin Exp Gastroenterol,2020,13:17-24.
    [37] DYSON JK,WILKINSON N,JOPSON L,et al. The inter-relationship of symptom severity and quality of life in 2055 patients with primary biliary cholangitis[J]. Aliment Pharmacol Ther,2016,44(10):1039-1050.
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  • 出版日期:  2020-09-20
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